https://www.allftd.org/research-1 daily 0.75 2019-02-21 https://www.allftd.org/participate daily 0.75 2025-09-16 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/691ef4e9-f8c2-43ce-82e7-69dca07a4d7c/GettyImages-1308292157.jpg Participate - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.allftd.org/home daily 1.0 2026-03-26 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1693511539830-X6HQN13UOS2XJIPTEULX/Tracts-3-720x517.jpg home https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1719271675668-M4NCS6IE20SEROL4VPI3/image-asset.jpeg home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1693605979450-YZEGV0764LFAO0PFSKTX/WF1045417_0044.jpg home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1693511810077-0XVTH0XVC5NOGNKGUZIS/WF2273314_0020.jpg home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.allftd.org/other-1 daily 0.75 2023-09-01 https://www.allftd.org/mission daily 0.75 2024-02-16 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1535567330934-EPR8KSVX1SIWVF98B0T4/saggital_mri.png Mission ‟FTLD is a devastating disease and a unique challenge for researchers. With the help of our partners in advocacy and industry, and the tremendous contributions from our patients and their families, we will develop effective treatments for FTLD.〞 — Dr. Howard Rosen, ALLFTD Principal Investigator https://www.allftd.org/sites-old daily 0.75 2024-04-23 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/892ca2ac-76d9-459e-a5e9-f69e73646565/ALLFTD_MAP_2023.png Sites initial Sites currently enrolling participants https://www.allftd.org/data daily 0.75 2026-01-07 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1565914676378-MCD3AKCBVI88JEQ6VA7O/Data+request+flow+clinical.png Resource Sharing Data request process. Please note that NACC data are available independently, but ALLFTD can not match NACC-provided datasets with other data. Click for larger view. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1566492927553-6F1EOBNGZS261GE3TDQO/Data+request+flow+bio.png Resource Sharing Biospecimen request process. Minimal clinical data set is provided when results are returned for unblinding. Additional clinical data may be requested after unblinding. Click for larger view. https://www.allftd.org/patient-advocacy-groups daily 0.75 2023-09-01 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1579282192374-DGAUJD2E5YSX3WHGPQ3J/AFTD.jpg Patient Advocacy Groups https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1579282554306-TX7ELAYMLKEFAO63T4PW/Bluefield.ai.jpg Patient Advocacy Groups https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1579282967365-CXAI7CPUQ5A4G57UJICE/Brain+Support+Network.png Patient Advocacy Groups https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1580509665096-7GLDUIHLVIZG6A88M2T7/2494_160203_CurePSP_New_CMYK.jpg Patient Advocacy Groups https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1579284584527-18BOPEO9Z0Z17JF73DW7/FTD-Registry-2019-Logo_RGB-400x180px.jpg Patient Advocacy Groups https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1580512149199-QGRLYEO8RYA4VEJ0FJTE/tau-logo.png Patient Advocacy Groups https://www.allftd.org/study-information daily 0.75 2025-09-10 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/f88d8544-91e0-4037-8b85-7f0e1a60266f/ALLFTD+Study+Eligibility.png ALLFTD Study Information (about ALLFTD) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/3adfedbe-f250-45be-972c-155262ed3197/ALLFTD+Study+Breakdown+Image.png ALLFTD Study Information (about ALLFTD) https://www.allftd.org/glossary daily 0.75 2019-08-12 https://www.allftd.org/publications daily 0.75 2024-05-03 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1578976365719-WPKZ2RS4Z2SRCS4ASCF3/A%26D+Special+Issue.png Publications - Alzheimer’s & Dementia Special Issue on FTLD The Alzheimer’s and Dementia Special Issue is a collection of 11 papers in FTLD and is a compilation of research from ARTFL and LEFFTDS. Thank you to all involved in this effort (research study participants and their families, investigators, scientists, etc.), we are extremely thrilled with the research published in this special issue! https://www.allftd.org/policies daily 0.75 2025-09-09 https://www.allftd.org/what-we-do daily 0.75 2014-01-16 https://images.squarespace-cdn.com/content/v1/52a74d9ae4b0253945d2aee9/1390513380961-PTHFXE5U2S1FJSLPXUSD/tumblr_mh1iruZWLf1rkz363o1_1280.jpg What We Do https://www.allftd.org/syndromes2 daily 0.75 2020-01-13 https://www.allftd.org/studyfaq daily 0.75 2025-01-23 https://www.allftd.org/allftd-executive-team daily 0.75 2025-01-23 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/25d676aa-60e8-43d3-87bb-27834b3ceb38/IM+2023+Group+Photo+1.jpg ALLFTD TEAM - Make it stand out The ALLFTD Team at the 2023 Investigators’ Meeting. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1571862692886-Y5DTSVSQPZ63UARUPRL1/Boeve+headshot.PNG ALLFTD TEAM https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/7697ba61-04d5-4682-9006-4077459b7fc7/UCSF_12152017-39+crop+%281%29+-+3.jpg ALLFTD TEAM https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1571862650424-YCONS192GTLEP4KK6CHS/Howie+Rosen.jpeg ALLFTD TEAM https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/ce8fd159-b256-4855-a595-e95aa5321aa3/lille+group+photo.jpg ALLFTD TEAM - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1578485891643-5AZ6FVN1EFTNNLK4QXOI/ALLFTD+Crop+2.jpg ALLFTD TEAM https://www.allftd.org/dataviz daily 0.75 2025-10-13 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/ebbbed2c-3761-4418-bc6f-0f05ac44728e/ProjectOverview.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/73955b73-0122-4b01-bafa-2f3717485f4b/CumulativeVisits.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/c5f9bf07-4a19-40bc-b69e-da68308e0162/LongitudinalEvaluations.png ALLFTD Data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/d45ea5e7-d944-4b88-bea7-d9e5e9ce12b4/AgeAtBaseline.png ALLFTD Data Age at Baseline Visit for ALLFTD participants https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/20949669-5ac8-44de-bd54-b4c2a8af50a1/Phenoconversion.png ALLFTD Data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/b65bdf82-4d69-4746-b069-1eb15909c484/Map.png ALLFTD Data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1760371063393-USN9HMA5RFYF0CU0QHGU/DiagnosesSporadic.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1760371068707-BVGPEUGSDRD0TANLQ241/DiagnosesFamilial_All.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1760371076104-Q9KDRP6KKVCCLAZC217O/DiagnosesFamilial_C9.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1760371080289-JOB4LJ71GRPS90I8DRBE/DiagnosesFamilial_GRN.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1760371092138-6W3EZR9VP92QU26JZ769/DiagnosesFamilial_MAPT.png ALLFTD Data https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1760371099846-AM22DJZGAEDKKREECZHU/CDRplusNACC.png ALLFTD Data https://www.allftd.org/power-point-templates daily 0.75 2025-10-22 https://www.allftd.org/im-presentations daily 0.75 2019-11-26 https://www.allftd.org/all-hands-calls daily 0.75 2026-02-04 https://www.allftd.org/diversity-resources daily 0.75 2020-07-18 https://www.allftd.org/2020-im-presentations daily 0.75 2020-10-19 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602805985121-MZKTV8K3ATPJWE5SIDHF/ALLFTD+Capture.PNG 2020 IM Presentations https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602806037431-JSWLA6LEVJQY6YZ8NNFX/ALLFTDphoto2.jpg 2020 IM Presentations https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602806062284-6OOHKA90DUTRVEXL2807/ALLFTDphoto3.jpg 2020 IM Presentations https://www.allftd.org/nspaaic2022 daily 0.75 2022-08-01 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/d380f79a-c983-49c6-9d4b-e77c32a9d5e2/AAIC+2022+NSP+Poster_20220713.jpg NSP AAIC 2022 Poster - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.allftd.org/recruitment daily 0.75 2022-04-05 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1614747143819-K5JZBQG38DJG7D4QGPAB/NSP-logo-transparent--1.gif Recruitment Resources - Recruitment Resources! https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1614658937686-8O59PYYU6YEYRTGSI9DY/NSPFactSheet_Thumbnail-1.jpg Recruitment Resources NSP Fact Sheet https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1614746329524-FKSY58XITPO1VR97GV9Y/NSP_Brochure_Thumbnail-1.jpg Recruitment Resources NSP Email Brochure https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1614746792082-PF6H3LR7E43DWUMYXY63/Participant_Safety-Thumbnail.jpg Recruitment Resources Remote Visit Safety Information Sheet https://www.allftd.org/nsp daily 0.75 2025-12-11 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1564630549867-W64Y3XHTKESCCHE0O4E1/NSP-logo-transparent--1.gif NSP https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602137131608-BCP26V32M3Z2OO11L7J7/HowItWorks_graphic-1.gif NSP https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602136860100-JSHMJXAO6YG8232G3I75/Timeline-1.gif NSP NSP visits will happen every three months, while your ALLFTD visits will happen once a year. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1569990143886-E9CNPFD6BWFVNNOZKH2S/iStock-507534264-med.jpg NSP https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154103820-KVX0V84NU1WJIJB4N8OH/NSPFactSheet_Thumbnail-1.jpg NSP NSP Fact Sheet https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154363661-J0SHRJOHIGE11L17DT23/Particpant_Safety-Thumbnail.jpg NSP Remote Visit Safety Information https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154777704-MULBR1AWX1Y98JDWRL7N/NSP_Brochure_Thumbnail-1.jpg NSP NSP Informational Brochure https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603152976966-JDI1L2MT5F0YVM7L3KUW/Map-StudySites-transparent-1.gif NSP https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1569640899088-HDDZ2NCRZB7CT1QLFLDO/Axon-new-2.jpg NSP A neurofilament is a part of a neuron that is made up of proteins including neurofilament light chain. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/2430f739-65fd-4812-8369-59e5efe5c455/NSP-Sponsor-Logos-2column-5.png NSP - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.allftd.org/allftd-im-2021-presetnations daily 0.75 2021-12-10 https://www.allftd.org/nsp-2021-06-updates-backup daily 0.75 2022-02-02 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1564630549867-W64Y3XHTKESCCHE0O4E1/NSP-logo-transparent--1.gif NSP 2021 06 Updates (Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602137131608-BCP26V32M3Z2OO11L7J7/HowItWorks_graphic-1.gif NSP 2021 06 Updates (Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602136860100-JSHMJXAO6YG8232G3I75/Timeline-1.gif NSP 2021 06 Updates (Backup) NSP visits will happen every three months, while your ALLFTD visits will happen once a year. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1569990143886-E9CNPFD6BWFVNNOZKH2S/iStock-507534264-med.jpg NSP 2021 06 Updates (Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154103820-KVX0V84NU1WJIJB4N8OH/NSPFactSheet_Thumbnail-1.jpg NSP 2021 06 Updates (Backup) NSP Fact Sheet https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154363661-J0SHRJOHIGE11L17DT23/Particpant_Safety-Thumbnail.jpg NSP 2021 06 Updates (Backup) Remote Visit Safety Information https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154777704-MULBR1AWX1Y98JDWRL7N/NSP_Brochure_Thumbnail-1.jpg NSP 2021 06 Updates (Backup) NSP Informational Brochure https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603152976966-JDI1L2MT5F0YVM7L3KUW/Map-StudySites-transparent-1.gif NSP 2021 06 Updates (Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1569640899088-HDDZ2NCRZB7CT1QLFLDO/Axon-new-2.jpg NSP 2021 06 Updates (Backup) A neurofilament is a part of a neuron that is made up of proteins including neurofilament light chain. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1611720395562-GEXNG1GS03V35WG10403/NSP-Sponsor-Logos-13.gif NSP 2021 06 Updates (Backup) https://www.allftd.org/nsp-2122-backup daily 0.75 2022-02-02 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1564630549867-W64Y3XHTKESCCHE0O4E1/NSP-logo-transparent--1.gif NSP (2-1-22 Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602137131608-BCP26V32M3Z2OO11L7J7/HowItWorks_graphic-1.gif NSP (2-1-22 Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1602136860100-JSHMJXAO6YG8232G3I75/Timeline-1.gif NSP (2-1-22 Backup) NSP visits will happen every three months, while your ALLFTD visits will happen once a year. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1569990143886-E9CNPFD6BWFVNNOZKH2S/iStock-507534264-med.jpg NSP (2-1-22 Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154103820-KVX0V84NU1WJIJB4N8OH/NSPFactSheet_Thumbnail-1.jpg NSP (2-1-22 Backup) NSP Fact Sheet https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154363661-J0SHRJOHIGE11L17DT23/Particpant_Safety-Thumbnail.jpg NSP (2-1-22 Backup) Remote Visit Safety Information https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603154777704-MULBR1AWX1Y98JDWRL7N/NSP_Brochure_Thumbnail-1.jpg NSP (2-1-22 Backup) NSP Informational Brochure https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1603152976966-JDI1L2MT5F0YVM7L3KUW/Map-StudySites-transparent-1.gif NSP (2-1-22 Backup) https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1569640899088-HDDZ2NCRZB7CT1QLFLDO/Axon-new-2.jpg NSP (2-1-22 Backup) A neurofilament is a part of a neuron that is made up of proteins including neurofilament light chain. https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1630703952410-VVYFDWZZOGC08EJ2ARWW/NSP-Sponsor-Logos-2column-2.gif NSP (2-1-22 Backup) https://www.allftd.org/nspfactsheet daily 0.75 2022-07-29 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1604623938326-PWV0ZUEKN2IB5O5763YU/NSPFactSheet_20200928.jpg NSP Fact Sheet https://www.allftd.org/remember-me-podcast daily 0.75 2025-09-09 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1660323476959-P4LV3MKE2MHZUTMD55CJ/remember+me+podcast+graphic.jpg Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095070444-8FZ1N08EEO999H3JML69/Ep+2.png Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095070415-H692B2FPAGNG1T2W9AVO/Ep+3.png Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095074871-4PW1Q4T86FG7D9FBHCUX/Ep+4.png Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095075354-61VV8K2CBVKV0DOBSEB1/Ep+5.png Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095078473-FA4GBR7J4DSKB0LYQK4Q/Ep+6.png Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095080410-05H1AIX6BQYPZF8U2W2J/Ep+7.png Remember Me Podcast https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/1663095081579-ALYHWP33LQUL0GRX8D19/Ep+8.png Remember Me Podcast https://www.allftd.org/nsp-isftd-2022 daily 0.75 2022-09-27 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/d380f79a-c983-49c6-9d4b-e77c32a9d5e2/AAIC+2022+NSP+Poster_20220713.jpg NSP ISFTD 2022 Poster - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.allftd.org/allftd-newsletter daily 0.75 2025-10-14 https://www.allftd.org/new-mobile-phone-app daily 0.75 2025-09-16 https://www.allftd.org/sites daily 0.75 2026-02-03 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/892ca2ac-76d9-459e-a5e9-f69e73646565/ALLFTD_MAP_2023.png Sites ALLFTD Sites https://www.allftd.org/otherresearchopps daily 0.75 2024-06-28 https://images.squarespace-cdn.com/content/v1/5b11ce562714e5c0f3f724da/71cdbaf4-a6a2-480b-8112-4578bc86b9e0/GettyImages-1283595148.jpg Other Research 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